Cross-Party Group Annual Report.

10 February 2015

Cross Party Group on Diabetes

1. Group membership and office holders.

Jenny Rathbone AM (Chair)

Helen Cunningham, Office of Jenny Rathbone (Secretary)

Darren Millar AM

Elin Jones AM

Jason Harding - Diabetes UK

Robert Koya-Rawlinson – Novo Nordisk

Becky Reeve - Sanofi

Dai Williams - Diabetes UK

Wendy Gane - Diabetes Peer Support

Jonathan Hudson – AstraZeneca

Hugh Thomas - Community Pharmacy Wales

Steve Bain - Swansea University

Paul Coker - Input Patient Advocacy

Nicola Davies - RCN Wales

Dr Sarah Davies - General Practitioner - Cardiff

Jackie Dent - Retired lead coordinator Diabetes in Wales

Pippa Ford – Chartered Society of Physiotherapy

Jonathan Fox - Boehringer-Ingelheim

John Griffiths - Lay Member

Penny Griffiths – Diabetes Peer Support

Lynne Hughes - Royal College of Nursing

Yvonne Johns - Diabetes North Wales Reference Groups

Dr David Miller Jones - General Practitioner

Lesley Jordan - Input Patient Advocacy

Helen Nicholls - British Dietetic Association

Robert Wright - Lay Member

Scott Cawley - All Wales Podiatry

David Chapman – Medtronic

Ros Meek - Medtronic

Patrice Cowan - Sanofi

Lindsay George - Cardiff and the Vale University Health Board

Colette Skilling - Medtronic

Chris Williams - Novo Nordisk

Greg Titley – Lay member

2. Previous Group Meetings since the last AGM.

Meeting 1.

Meeting date: Tuesday 4^th March 2014

Attendees:

Darren Millar AM (Chair)

Paul Coker (Input Patient Advocacy)

Nicola Davies-Job (RCN)

Rhian Shaw (Sanofi)

John Griffiths (Lay Member)

Penny Griffiths (Abbott Diabetes Care)

Jason Harding (Diabetes UK Cymru)

Dai Williams (Diabetes UK Cymru)

Sara Moran (Diabetes UK Cymru)

Robert Wright (Lay Member)

Ros Meek (Medtronic)

David Chapman (Representing Medtronic)

Alex Still (Office of Jeff Cuthbert AM)

Chris Williams (Novo Nordisk)

Helen Cunningham (Office of Jenny Rathbone AM)

Mirriam Dupree (Office of Jenny Rathbone AM)

Summary of issues discussed:

· Officers were appointed under the new rules governing the operation of cross party groups

· Patient reference groups in Powys – the group agreed to write to Powys LHB to ask how patients can engage with the health board

· Insulin pumps and numbers of Diabetes Specialist Nurses and access to specialist medical technology

· Potential sib groups on pumps and inpatient care

· Discussion about when the Diabetes National Clinical lead to be appointed

Meeting 2.

Meeting date: Tuesday 3 June 2014

Attendees:

Jenny Rathbone AM (Chair)

Armon Daniels (GP)

Kamila Hawthorne (GP)

Lynne Hughes (RCN Wales)

Sarah Davies (GP)

Vaughan Gething AM

Helen Nicholls (British Dietetic Association)

Scott Cawley (All Wales Podiatry)

Robert Wright (Lay Member)

Paul Coker (Input Patient Advocacy)

David Chapman (Representing Medtronic)

Ros Meek (Medtronic)

Robert Rawlinson Novo Nordisk)

Chris Williams (Novo Nordisk)

Wendy Gane (Diabetes Peer Support)

Sara Moran (Diabetes UK Cymru)

Jason Harding (Diabetes UK Cymru)

Helen Cunningham (Office of Jenny Rathbone AM)

Mirriam Dupree (Office of Jenny Rathbone AM)

Summary of issues discussed:

· Response not received from Powys re patient engagement. The group agreed to write to the Minister about it. Further discussion of role of Diabetes Planning and Delivery Groups and Community Health Councils

· Improving Primary Care: GPs Armon Daniels & Kamila Hawthorne both gave presentations to the group on the Rumney & Butetown experiences

· European Diabetes Leadership Forum: Report back by Jenny Rathbone

Meeting 3.

Meeting date: 14 October 2014

Attendees:

Jenny Rathbone AM (Chair)

Jeff Cuthbert AM

John Griffiths (lay Member)

Angela Magny (Roche Diabetes Care)

Penny Griffiths (Diabetes Peer Support)

Kinsey Jones (Clinical Advocate)

Julia Platts (National Clinical Lead)

Jason Harding (Diabetes UK Cymru)

Dr Lindsay George (Clinical Lead, Diabetes,Llandough Hospital)

Robert Koya Rawlinson (Novo Nordisk)

Lesley Jordan (Input)

Ben Everard (Sanofi)

Paul Coker (Input Patient Advocacy)

Helen Nicholls (British Dietetic Association)

Greg Titley (Lay Member)

Scott Cawley (All Wales Podiatry)

David Chapman (Representing Medtronic)

Ros Meek (Medtronic)

Robert Wright (Lay Member)

Helen Cunningham (Office of Jenny Rathbone AM)

Mirriam Dupree (Office of Jenny Rathbone AM)

Dai Williams (Diabetes UK)

Summary of issues discussed:

· Robert Wright advised members he had presented the Petitions Committee with a petition calling on Powys LHB to re-instate the DPDG and PRG. The Group welcomed the revised position of the Health Board.

· Dr Julia Platts; National Clinical Lead for Diabetes gave an outline of recent developments and set the scene for the priorities in the first year. At present the All Wales Implementation Groups (AWIG) is pulling together recommended standards from the Diabetes Delivery Plan (DDP) and will have actions to recommend to all Health Board Chief Executives.

· Sub group updates – Updates received on Inpatient Care and insulin pumps It was agreed that to avoid any duplication of work, Julia would report to the sub group and the sub group would report to the CPG. agreed that Diabetes UK would look into how they can capture patient experiences.

Professional lobbyists, voluntary organisations and charities with whom the Group has met during the preceding year.

Annual Financial Statement.

10 February 2015

Cross Party Group on Diabetes

Chair: Jenny Rathbone AM

Secretary: Jason Harding – Diabetes UK Cymru

Group’s Expenses.	None.	£0.00
Costs of all goods.	No goods purchased.	£0.00
Benefits received by the group or individual Members from outside bodies.	No benefits received.	£0.00
Any secretariat or other support.	No financial support received.	£0.00
Services provided to the Group such as hospitality. All refreshments kindly paid for by Novo Nordisk and Sanofi Diabetes.
Date	Description and name of provider	Cost
13/03/2014 06/06/2014 19/06/2014 17/11/2014	Cross Party Group Meeting Stakeholder Annual Event Cross Party Group Meeting Cross Party Group Meeting	£183.48 £469.14 £125.40 £217.68
Total cost		£995.70